Friday night, I spent hours speaking to a dear friend about my fatigue, and about my future. She helped me realize I had stopped hoping for any kind of cure, or even to just get a little better. As we talked about the possibilities of me returning to work, feeling better, or starting a family,…
I have written three previous posts about fatigue. One is an attempt to explain what chronic fatigue is like. The second is a checklist I use to get through days with especially low energy. Lastly, I wrote about how I communicate about my fatigue with doctors when they either don’t understand or don’t believe me.…
Chronic illness isn’t fun, but it sure is interesting! My mystery symptom of the week is intense spasming in my lower back, so painful I’m having trouble sleeping, concentrating, or doing much of anything. Check back later this week for a more substantive post, about the consequences of doctors ignoring or mishandling patient complaints of…
The Professional Patient 